People keep asking me for my feelings about the new movie, Five
Feet Apart, so I thought I would take some time to write down my thoughts.
For those of you who don’t know, Five Feet Apart is a movie that
features main characters who are living with cystic fibrosis. This is the first
major Hollywood movie to really dive into life with CF at all.
Now, the CF community is pretty divided on whether they are
happy about the movie or not. I am so excited about it! This is a huge
opportunity to raise awareness and money for CF! People who have never heard of
cystic fibrosis are going to see this movie, and they will leave with a greater
understanding of the disease. Even with just previews, my 4th grade
students have been asking great questions. I already shared with them that I
have CF, and I do a brief explanation so they can kind of grasp what it is. But
these previews have truly led to amazing conversations about what my life is
like with cystic fibrosis and why I can’t be around others who have it. This is
itself has been great for helping with the awareness just in my classroom with
my students. So can you imagine what it could do for the general population?
One of the arguments against the film is that it just shows
one side of CF. The quote, “That’s not my CF story,” has been used a lot. This
view truly baffles me. Cystic fibrosis affects every person differently. How
could one movie possibly show everybody’s story? These characters are sicker
than I am, but I am not going to frown upon the movie because there isn’t a
character just like me. I refuse to be offended that they chose to tell one
specific story! There are a lot of people who have CF that do have a similar
story. Who am I to say that my story is more important than the one being told
in the movie? My story is not more important. It’s my job to share my story not
this movie’s. I can share how my story differs from those in the film, and that
can lead to even more awareness and education.
So, will I be seeing Five Feet Apart? You better
believe I will! I plan on going more than once, because I think it is an
important film. It’s a huge step for us as a rare disease, and I will be
telling everyone I know to go.
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