My Cystic Fibrosis
As soon as I got the diagnosis, I started seeing a CF specialist at Children's Hospital. My parents decided to do everything they could to help find a cure. They started raising money for the Great Strides walk that first year and have every year since then. That has rubbed off on me which is why I started this blog and work so hard to raise money each year.
After starting with my CF specialist, I quickly accumulated new treatments and medications. When I was 10 years old, I got my first vest. The machine was a lot bigger than the one I have now. I thought it was the coolest "toy" ever. My how times change!
My health stayed relatively good through high school. For college, I moved away from home and quickly got used to the freedom. I didn't have my parents reminding me to do my treatments all the time, and I loved it! I started skipping treatments. It got to the point where I was skipping more than I was doing. My lung function started declining pretty drastically. August after I graduated from MTSU, I went to the doctor and found out that my lung function was down to 34%, and I had lost 10 pounds. My doctor told me that it was time to start thinking about the future possibility of a lung transplant.
So, the next thing I had to do was go to a Vanderbilt transplant doctor to get set up in the system. Since finding out the terrifying news that I might be close to needing new lungs, I stepped it up and began working really hard to take better care of myself. Since then, I have raised my lung function almost 30%! It is an on-going battle, but I'm going to keep fighting.