Friday, January 2, 2015

Great End and Even Better Beginning

Everyone seems to be giving a little recap of their 2014, so I thought I would join suit. 2014 was a fantastic year, because it was the year that I finally took control of my health. I made choices that are positively affecting every aspect of my cystic fibrosis life. I made a resolution last year to be 100% compliant with my breathing treatments in 2014. Honestly, I wasn't sure I would be able to do it since I have struggled with compliance for quite some time. In fact, during college, I rarely did my treatments... how I wish I could go back in time and knock some sense into my younger self.

 I also started working out with a trainer who has been creating workouts for me that are specific to my body's needs. I have been doing things that I never thought I would be doing. I can dead lift 135 pounds! That's 21 pounds more than I currently weigh!

Another big change in 2014 was my vest. I invested in the Afflovest, and I love it! I can really tell a difference in how productive my cough is during my treatments. I'm so grateful to have the opportunity to use this new piece of technology. The fact that it has a battery makes it even better because I have had the opportunity to use it in the car and at work a few times!



Now for the best part of 2014/2015. As many of you know, my last clinic appointment did not go quite as well as I had planned. My lung function had dropped from 47% to 43%. After discussing it with my doctor, she decided to put me on Zyvox which is a pretty intense oral antibiotic that is used to combat the MRSA that I have growing in my lungs. She also wanted me to do a follow-up PFT in 3 weeks to make sure I was doing better. If there was little or no improvement in my numbers, we were going to try a PICC line with Vancomycin.

After the first week of antibiotics, I was feeling much worse than I had been when I was at the doctors. I called, and they decided to add yet another antibiotic along with steroids to help my body jumpstart the healing process. That seemed to do the trick, because I began feeling better after just a few days.

And that brings us to today. I went for my follow-up PFT, and I was pretty nervous. I was feeling great, but that doesn't always translate into the numbers. My lung function was at 49% today! Not only did I make it back to where I was in August, but I surpassed that and almost made it to 50%! I could not be more excited and relieved with my numbers today! It just continues to show me how much my hard work is paying off, and it encourages me to push even harder!

So as of right now, I don't have any specific resolutions for 2015, but I will say this: I will continue being compliant with my treatments, and I will continue pushing as hard as I can in my workouts. There is not a doubt in my mind that those two things are the reason my lung function is the highest it's been since June 2013. I feel amazing, and I can't wait to see what this year brings!

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