sweat test which is the procedure that is used to determine if a patient has CF.
I mentioned that I had digestive issues as a child, and I just remember excruciating pain dealing with those issues. When I look back at pictures of me as a kid before my diagnosis, I looked malnourished. I had the thin limbs with the distended belly due to my body being unable to digest the food that I was eating. I am so thankful for that pediatrician that actually listened to my mom and tested for cystic fibrosis.
Once I received my diagnosis, life changed pretty dramatically. We started going to a specialist for my disease, and I had to begin taking new medications and doing breathing treatments. I continued staying active, and thankfully, my parents chose not to put me in a bubble because of CF. I was always outside playing with the neighborhood kids, and it was like pulling teeth trying to get me to come inside at night. I struggled with the fact that I had to go inside earlier than my friends, because I had to fit in a breathing treatment before bed.
In elementary school, I was not embarrassed by cystic fibrosis, because it really didn't matter what people thought about me. I didn't let it effect what I was doing or who I was friends with. The biggest problem I had with it was that I had to go to the office everyday to get my digestive enzymes before lunch. That was always an inconvenience to me.
My childhood was great minus the hassles that cystic fibrosis presented. My parents allowed me to live my life as close to "normal" as possible. My family hit the ground running after I received my diagnosis. They knew they had to do everything in their power to fight this disease. We began raising money and participating in Great Strides that year. We have been doing the same thing every year since then. This year will be my 20th year with Great Strides! I plan on doing everything I can to fight the disease for not only me, but for every person who is struggling with it.
To make a contribution to the Cystic Fibrosis Foundation, just click on the picture below. :)