Wow! My blog has now been viewed over 30,000 times! What??? I'm honored that you all feel that what I have to say is interesting enough to read. I started writing this blog as a way to let my feelings about living with cystic fibrosis out in the open instead of holding it in. I also was looking for a way to connect with others dealing with the same things I am and a way to share my daily life with CF with my family and friends. I never knew that others would take the time to see what I have going on in my life. :)
In case anyone is keeping track, I am now on day 68 of being 100% compliant (victorious)! I have to say that I am pretty proud of myself for sticking with my breathing treatments even with work being completely crazy lately. There have been days that I have woken up way later than intended forcing me to go to work with my hair still wet, but I still got my morning breathing treatments in.
In Great Strides news, I have now raised $520, and my team is up to $745! I still have a long ways to go to meet my goal of $8,000, so please consider helping me out. Any amount is greatly appreciated! All you have to do is click on the picture below.
Wednesday, March 12, 2014
30,000
Thursday, March 6, 2014
Exciting Times
There are so many exciting things going on right now, so I felt the need to share with you all. :)
First of all, Eldon and I are in the process of buying our first home, and we couldn't be more excited about it! The house is absolutely beautiful, and we can't wait to be able to move in. It has been a terrifying and thrilling experience. It feels like such an adult thing to do when I still have troubles believing I am actually an adult even though I'm 26 years old. I am definitely ready for this next, huge step in my life.
First of all, Eldon and I are in the process of buying our first home, and we couldn't be more excited about it! The house is absolutely beautiful, and we can't wait to be able to move in. It has been a terrifying and thrilling experience. It feels like such an adult thing to do when I still have troubles believing I am actually an adult even though I'm 26 years old. I am definitely ready for this next, huge step in my life.
Next, I found out today that my blog was named one of the Top 35 cystic fibrosis blogs! I am so grateful that people even read my blog let alone recognize it as a top blog to read about CF. If you would like to check out some of the other great blogs out there about living with cystic fibrosis, just click here. There are some wonderful blogs listed in the top 35! I am an avid reader of most of them. :)
In other news, I am once again the chairperson for the Knoxville Great Strides walk, and we have been really working hard to get things lined up and planned for the big day! I'm so excited about what the walk will look like this year! There are some great things already planned, and I'm sure our committee is going to come up with more amazing ideas.
Speaking of Great Strides, I have now raised $120! But I have so much more to go in order to reach my goal of $8,000. If you are interested in making a donation, just click on the picture below, and click "donate to me." It's incredibly easy to do, and there is no such thing as too little! Every little bit of money adds up, and it helps fund research to find a cure for cystic fibrosis.
Finally, I am once again selling Kayla's Krusaders t-shirts to help my fundraising. They are $20 each, but the more shirts I order, the cheaper they actually are. Any money that is left over after ordering the shirts will go straight to the Cystic Fibrosis Foundation. If you would like a shirt, let me know
Monday, March 3, 2014
March!
Somehow it is already March! I have no clue how that happened! Time is flying by, and the Great Strides walk is quickly approaching. The walk is May 10 this year, and I have set a hefty goal of $8,000 for my team. I definitely think we can make it to that total, but we have a ton of work to do.
For those of you who may not be familiar with Great Strides, it is an annual fund raiser for the Cystic Fibrosis Foundation. CFF is one of the most important tools in funding a cure for cystic fibrosis. The foundation is the one behind the controller drug, Kalydeco. This medicine is a game changer for some of those living with cystic fibrosis. It has opened doors for the rest of us as well with new clinical trials going on that, if successful, would benefit about 90% of us with the disease! (This includes me!)
Please consider making a donation to help us reach a cure. Help us add tomorrows for not only me but for the 30,000 Americans and 70,000 people worldwide living with this disease. Already, there have been leaps and bounds made in the life expectancy for cystic fibrosis patients, but it would be even better if our life expectancy was no different than anyone else.
Don't worry about your donation being too small! There is no such thing! Every little bit of money makes a huge difference, because it all adds up. If you would like to make a contribution, just click on the link below and follow the instructions. It's very easy, and it's all tax deductible! :)
For those of you who may not be familiar with Great Strides, it is an annual fund raiser for the Cystic Fibrosis Foundation. CFF is one of the most important tools in funding a cure for cystic fibrosis. The foundation is the one behind the controller drug, Kalydeco. This medicine is a game changer for some of those living with cystic fibrosis. It has opened doors for the rest of us as well with new clinical trials going on that, if successful, would benefit about 90% of us with the disease! (This includes me!)
Please consider making a donation to help us reach a cure. Help us add tomorrows for not only me but for the 30,000 Americans and 70,000 people worldwide living with this disease. Already, there have been leaps and bounds made in the life expectancy for cystic fibrosis patients, but it would be even better if our life expectancy was no different than anyone else.
Don't worry about your donation being too small! There is no such thing! Every little bit of money makes a huge difference, because it all adds up. If you would like to make a contribution, just click on the link below and follow the instructions. It's very easy, and it's all tax deductible! :)
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