Wednesday, August 28, 2013

Frustrated but full of hope

Well, today was my clinic appointment at Vanderbilt. Many of you know how hard I have been working this summer to make my lung function and weight go up. Today is day 94 of 100% compliance with my treatments, and I started doing Insanity last week. I was hopeful for today's appointment. I really wanted to see my numbers go up, but I did not set a goal for my lung function due to being disappointed the last few times.

My lung function today was at 48% which is about what it was last time. I was definitely frustrated, but I have been told by quite a few people that sometimes, it takes longer for your hard work to actually show up in your numbers. Keeping that in mind, I'm trying not to be too disappointed with the lack of movement. I still maintained my lung function which is good, and I still have hope that I will see improvement in the future.

Here's the exciting news: I have been working really hard on gaining weight.... I gained 8 pounds!!! My doctor was thrilled to see that and encouraged me to gain a few more pounds. He was also very happy to hear how hard I've been working and felt that I might see more improvement in my numbers next time.

He said my lungs sounded great, and that's all I can really ask for! :) We also talked a little about the hope that the new medications that are in trials right now offer. I'm excited to see what the future holds for me.

My plan moving forward is to just keep doing what I'm doing. I'm going to continue working out everyday and being compliant with my treatments. I'm going to put everything I have into my health so that I have no regrets. I have so many regrets from my college years when I completely neglected my health, and I am determined not to have any of those for this time in my life.


  1. Any tips on how you gained 8lbs?? Great job!!

  2. I force fed her. :) Okay, not really... but I did nag her a lot!!

  3. Sounds like a great report to me! You just have to stick with it (and apparently keep being nagged by Marla)! :)

  4. You're an amazing woman that I look up to! such a positive and hopeful person and i know you'll keep working hard to see results. Love you!