After two weeks of having IV antibiotics, I went to have my follow-up PFT on January 2nd. My FEV1 showed almost no improvement at all. It went from 40% to 41%. I also lost some more weight. I was extremely frustrated, and my cystic fibrosis nurse was very concerned. After talking with one of my doctors, they came up with a new game plan. I'm now on the oral version of vancomycin which is called zyvox. I will be taking this antibiotic for two weeks along with prednisone. I'm very hopeful that this plan will be more effective for me. I know many people who get amazing results from IV antibiotics, but of the three times I have used them, I really haven't seen much improvement.
I have been feeling terrible for over a month now, and I'm praying that this works for me. I'm so ready to be back to my old self. Without the limitations of having a picc line in my arm, I will be more able to get back into a work out routine. I have another follow-up PFT in two more weeks. The prednisone should help with my appetite as well, so I'm hoping to put some of my weight back on soon. I have lost a total of 14 pounds. I haven't weighed this little since my old doctor told me I needed a lung transplant.
After just two days on this new regimen, I already have more energy, so I have high hopes! I start work on Monday, so I just need to get back to feeling better soon.
I'm glad to hear that you already have more energy! Sucks that you had to go through IVs without them even working, I'm sorry you had to do that - especially over your break! I hope you gain more energy each day and that you have a great transition back to work Monday. Thinking of you :)
ReplyDeleteThanks! I think it will be good to be back at work. I feel like all I have been doing is sitting around and thinking about how horrible I've been feeling. Hopefully, work will give me something else to do. :)
DeleteOh no! I have been there before, all the work of IVs and no payoff. I hope the orals work and you are back to your old self.
ReplyDeleteIt can be so frustrating because the IVs are such a big commitment. I have a really good feeling about this new plan. We'll see though.
Delete