Sunday, October 2, 2016

CFRD

As most of you know, I have been waiting to figure things out about my new possible diagnosis of Cystic Fibrosis Related Diabetes (CFRD). Well, I finally had my first appointment with the endocrinologist on Wednesday this week, and I went into it incredibly nervous and not know what to expect. The doctor and nurse practitioner were very kind and knowledgeable about CFRD. They asked me background questions and went over all of my blood work and came to the conclusion that for now, my body is still producing insulin. It just can't keep up when I drink straight sugar like in the glucose tolerance test.

They decided that I need to start monitoring my blood sugar just to keep track of what it is doing. So, for now, I just have to check it once a week unless I am sick. If I happen to get sick, I will have to check it once a day. I go back in 3 months for another check up. If nothing has changed, we will continue with the same plan, and I will get to go 6 months in between visits.

Thanks for all the good thoughts and prayers! I think this is the best news I could have hoped for, and I'm hoping that we are able to stick with this game plan for awhile.

4 comments:

  1. I am glad you are just in the monitoring phase. I was told to use a meter as a way to monitor my sugar levels about seven years ago. I am still CFRD free. Well, for now! I am due for another glucose test. I think they are starting a clinical trial on a med that is supposed to delay (or prevent?) CFRD. It would be amazing if we could delay CFRD until the drug goes to market (and if it works as expected).

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    1. Hi Kayla! name is Jenna.I am an Occupational Therapy student and I have been reading your blog. I am very interested in hearing more about your experiences both positive and negative, could we set up a time to talk? Please send me an email at jstaub3@students.towson.edu if you're interested! Thank you.

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  2. Hi Kayla! name is Jenna.I am an Occupational Therapy student and I have been reading your blog. I am very interested in hearing more about your experiences both positive and negative, could we set up a time to talk? Please send me an email at jstaub3@students.towson.edu if you're interested! Thank you.

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