Lately, I feel like life has been treating me ridiculously
well! I fell so blessed! To begin with, I am on day 10 of being 100% compliant
with my treatments. I’m also working out as much as I can at the gym and at
home. I’m making sure to do a little bit of everything including cardio and
strength. I’m on the road to higher weight and lung function!
Yesterday, at work, I had my final evaluation. It was
unannounced and slightly stressful, but I am finished with evaluations for the
rest of the year! We have two unannounced and two announced throughout the
year, and I am so thankful to have all of my evaluations for my first year of
teaching behind me!
Finally, Vertex (the company that gave us Kalydeco),
announced yesterday they will be starting Phase 3 of their trials of Kalydeco
and VX-809 together. The trials are being done with cystic fibrosis patients
who have two copies of the DF508 mutation (the most common mutation in those of
us with disease). I just happen to have the double copy of that mutation! They
have said that if everything goes well, they hope to send it to the FDA for
approval in 2014! I could not be more excited about this news and what it could
mean for my future as well as thousands of others with the same mutation! This
is why I work so hard to raise money for the Cystic Fibrosis Foundation every
year.
With all of that being said, I am starting my fundraising
campaign. If you are interested in making a donation to the Cystic Fibrosis
Foundation, just click on the link below. I will also be selling t-shirts once
again. If you would like to order a t-shirt, just let me know what size you
need. I charge $20 a shirt. The more that are ordered, the cheaper they are. So
any extra money I get from the shirt orders, will go straight to the Cystic
Fibrosis Foundation. The shirts come in sizes YXS to 3XL.
If you would like to read more about the Vertex announcement, just click on the links below.
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