Wednesday, March 15, 2017

What a Day

Well.... today was crazy and difficult. I guess I'll start from the beginning. Trump was scheduled to be in Nashville today, so I had already planned to leave a little earlier than normal in case there was bad traffic once we got there. Unfortunately, my dad called this morning to let me know that there was a bad accident blocking both lanes of I40 W. So we started rushing to get out the door as quickly as we could. We jump in the car, and I turn the key to start it..... and nothing. My car wouldn't start... dead battery. So we get into Eldon's car and had to run to get gas before we could even hit the road. Not exactly the best start to the day. Luckily, the crash had been cleared before we made it that far, so we did not have any extra delays from that.

That brings us to the actual appointment. Going into it, I was feeling confident that my numbers would be higher because of how good I've been feeling lately. Clearly, my lungs have just been fooling me... My lung function today was 43%. To say I was disappointed would be an understatement. Normally, I send out my update texts to family and friends right after my PFT, but today, I just waited. I didn't want to send my bad attitude with my update.

When my doctor came in, he asked how I was feeling, and I told him I thought I was feeling better than what my numbers showed. He pulled out a paper with 3 years worth of my PFT's, and as we looked at it together, we saw that I have a definite trend. My numbers are lower in the late fall/early winter and in the early spring. They tend to be higher if it's late spring or summer. Seeing that helped me stop freaking out, and he assured me that he wasn't worried since I have been feeling so good. I then brought up the lung pain that I have been having from time to time in what seems like random times. He pretty confidently told me that it was probably just inflammation which could be treated with Ibuprofen as needed.

Was today a great appointment? No. But it could have been a whole lot worse. I've maintained my lung function through all the sickness that has been going around, and I'm feeling good. Once I reminded myself all of that, I was able to actually update people without the extra frustration. So what now? The same as always... I keep on keepin' on. There's no time to fret about it. I just have to keep doing what I'm doing.

Thanks for all the thoughts and prayers! I really appreciate it!

http://fightcf.cff.org/goto/kaylaskrusaders

4 comments:

  1. Glad that your doctor was able to put things into perspective for you. I didn't know that various seasons could have such an effect on ones PFT numbers, (it's only been 8 months since my son has been doing them.) You learn something new everyday.

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  3. Kayla English I feel the same

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  4. I was diagnosed by biopsy with Idiopathic Pulmonary Fibrosis in Jan. 2006. My Doctor prescribed actimmune after my 3rd pulmonary embolism in 2006, I read that people usually die within 5 years. My specialist had me on blood thinners, prednisone and other steroids that I inhale daily. My blood/oxygen is 95% and my main symptom is shortness of breath if I push myself too hard, when this occurs, I just rest.nothing was really working to help my condition.I went off the steroids (with the doctor’s knowledge) and started on Pulmonary Fibrosis herbal formula i ordered from Health Herbal Clinic, my symptoms totally declined over a 5 weeks use of the IPF natural herbal formula. i am now doing very well,Somehow, they managed to keep me alive for 10 years Visit there website www. healthherbalclinic. net or email Info@ healthherbalclinic. net I feel blessed to be here.

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