tag:blogger.com,1999:blog-8247873224706979412.post9030183981930940033..comments2023-12-24T05:40:44.706-06:00Comments on One Breath at a Time - Living with Cystic Fibrosis: Lack of UnderstandingAnonymoushttp://www.blogger.com/profile/09763447217562068076noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-8247873224706979412.post-83818892617419525302011-04-03T02:12:44.774-05:002011-04-03T02:12:44.774-05:00Great post. I definitely think you are doing just ...Great post. I definitely think you are doing just that with your blog. It is amazing how little awareness there is about CF. And, you are correct about the lung transplant. I am post-transplant. Once you get new lungs, CF does NOT exist in your lungs. They are completely clear of it. You do still have it in your sinuses and digestive tract. And the main concern post-transplant, like you said, is rejection and catching colds/illnesses like pneumonia due to a compromised immune system. Rejection can be treated now, and most centers do a really good job of monitoring it and treating it aggressively if it happens. If a CF person dies post-transplant, it is usually due to a severe case of pneumonia or other bacterial infection. Hope that helps! I really enjoyed this post.Kateyhttps://www.blogger.com/profile/11628086713110351792noreply@blogger.com