tag:blogger.com,1999:blog-8247873224706979412.post8653781822870210635..comments2023-12-24T05:40:44.706-06:00Comments on One Breath at a Time - Living with Cystic Fibrosis: Why Great Strides is important to meAnonymoushttp://www.blogger.com/profile/09763447217562068076noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-8247873224706979412.post-62896376979989857042015-04-12T10:33:17.850-05:002015-04-12T10:33:17.850-05:00I would love to share! Thank you for reading and p...I would love to share! Thank you for reading and posting! And a big thank you for the work that you are doing to raise money for CF! Anonymoushttps://www.blogger.com/profile/09763447217562068076noreply@blogger.comtag:blogger.com,1999:blog-8247873224706979412.post-17485243719836885452015-04-06T19:32:30.785-05:002015-04-06T19:32:30.785-05:00I actually now 2 families, who have sons with CF, ...I actually now 2 families, who have sons with CF, it's heartbreaking. Also my former employer donated a larger amount every year to hire a research assistant at Johns Hopkins. I was proud to work for a company who was so involved. I'm again signed up for the Great Strides Walk this year (Fredericksburg VA) and hope to raise money through shoe charms I make. I have a hard time asking people for money, so I decided to be creative. One is a CF awareness ribbon, the other one is a shoe tag with the great strides logo. Would you mind sharing those on your blog and/or with friends and family? The more people know about it, the more we can raise. Thank you!!<br /><br />Here are the links:<br /><br />CF ribbon shoe tag: <br />https://www.etsy.com/listing/228698798/cystic-fibrosis-awareness-shoe-charm?ref=listings_manager_grid<br /><br />Great Strides shoe tag: <br />https://www.etsy.com/listing/228699214/cystic-fibrosis-awareness-shoe-charm?ref=listing-shop-header-0<br /> Christine {dreamBIGrunner}http://www.dreambigrunner.comnoreply@blogger.comtag:blogger.com,1999:blog-8247873224706979412.post-75663029661099061902015-02-26T11:11:42.207-06:002015-02-26T11:11:42.207-06:00I completely agree! You have to live life to the f...I completely agree! You have to live life to the fullest when you are dealing with cystic fibrosis. Thanks for reading! :)Anonymoushttps://www.blogger.com/profile/09763447217562068076noreply@blogger.comtag:blogger.com,1999:blog-8247873224706979412.post-57527578528377553852015-02-25T19:05:10.959-06:002015-02-25T19:05:10.959-06:00Whats you're writing is right... The newborns ...Whats you're writing is right... The newborns even tested and it makes great difference then when we are born. And what you're writing about the life expectancy... its hard to hear at that age. But what i've learned then was to take the moment and enjoyed the fullest. Nice post!Anonymoushttps://www.blogger.com/profile/13250315738565875286noreply@blogger.com