I also received my 2013 Kayla's Krusaders shirts in the mail! They look fantastic, and my team seems to really like them. :) I could not be more excited about the Great Strides walk this year! My team is probably doubled in size, and the walk is going to be in a much better location. As the chairperson for the walk this year, I have been able to get previews of what the walk is going to look like. There are so many new, exciting things being implemented.
Speaking of my team, the reason it has doubled in size is because of my amazing work family! At least 30 people that I work with at the school ordered a shirt and are planning on walking on May 18! We all wore our shirts on Friday, and it was such an amazing feeling seeing all of those people showing their support for me and my cause. The students even got in on the act, because they were so curious about why all the teachers were wearing a shirt with my name on it. I explained to them what I have and what that means. They were so sweet with expressing their concerns and questions about the disease. Many of them have said they want to attend the walk as well. I cannot express how much I love my job!
One final piece of news: Vertex released information about Phase 2 of VX-661, one of the drug combinations that is being tested for those of us with DeltaF508 (the most common CF mutation). The trial has shown significant improvement in lung function! That's the kind of news I like to hear! I hope and pray that things keep going the way they are and the news stays positive! I have high hopes for the future!